Congenital Diaphragmatic Hernia
Congenital diaphragmatic hernia (CDH) is a complex condition that requires immediate care from a team of specialists upon diagnosis, which can be a vital component to successful outcomes for patients. CDH affects approximately 1,000 babies each year and many will have severe complications at birth and throughout childhood. While the exact cause of CDH is unknown, CDH care must involve specialized expertise to optimize outcomes.
With more than 30 years of CDH experience, Children’s Memorial Hermann Hospital is a national referral center that includes a team of specialists dedicated to fetal, neonatal and long-term care of children born with CDH. Through the collaboration of affiliated specialists from McGovern Medical School at UTHealth, fetal, neonatal and pediatric specialists work in concert to provide families with a continuum of care from diagnosis and treatment, through delivery, neonatal care and long-term follow-up care – all conveniently located at the same facility.
Based on risk-adjusted data, Children’s Memorial Hermann Hospital’s CDH postnatal outcomes rank in the top 10 percent or higher worldwide.
What is CDH?
CDH occurs when there is an opening in the diaphragm, the muscle that separates the organs in the abdomen from the organs in the chest. The abnormal development of the diaphragm, occurring before birth, causes a hole in this muscle that helps control breathing and is linked to the development of the lungs. CDH may range from a small hole, or hernia, to the complete lack of the diaphragm.
As a result of an absent or partially formed fetal diaphragm, the abdominal organs (stomach, intestines, liver, spleen, kidneys) move into the chest opening during pregnancy and crowd the baby’s heart and lungs. This can lead to compression and underdevelopment of the lungs (pulmonary hypoplasia), and potentially life-threatening breathing difficulties after birth. Many infants with CDH may have other complications, such as developmental problems with the brain, kidneys and bowel. All of the abnormalities are usually inside the body – the child’s face and external body are typically normal.
Children’s Memorial Hermann Hospital and affiliated physicians provide families with a continuum of care and resources for their child’s healthcare needs from fetal diagnosis, through infancy, childhood and into adulthood.
Contact UsRefer a PatientEn EspañolWhy Choose Us?
Optimal care of the CDH patient starts before birth. Throughout pregnancy, both mother and baby are closely monitored and evaluated to determine the best plan of care for treatment before and/or after delivery.
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As one of the most experienced teams, the affiliated physicians work together to offer the best care possible and continue to improve long-term patient outcomes.
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Research for CDH
The affiliated physician researchers at Children’s Memorial Hermann Hospital are actively involved in research projects focused on the mechanisms, treatment, and cure of CDH and other fetal disorders with the goal of improving patient outcomes. Visit the links below to learn more about innovative research projects aimed to improve patient outcomes.
Research trials under way include:
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The First FETO Intervention Patient of The Fetal Center
Courtney’s ultrasound scan results suggested the baby’s stomach was in the wrong place – an indication of CDH.
Read the full story »
Grace’s Story: Overcoming CDH
Marlen and Kevin turn to the Fetal Center after their unborn baby, Grace, was diagnosed with CDH.
Read the full story »
Gavin’s Story: Filling the Gaps
A surgery reverses a newborn’s rare, life-threatening defect.
Watch his story »
Why choose Children’s Memorial Hermann Hospital?
Home to one of the most comprehensive CDH programs in the United States, Children’s Memorial Hermann Hospital combines expertise to provide optimal care for families beginning at prenatal diagnosis through delivery, postnatal care and long-term follow-up. Nurses and affiliated physicians work in concert to provide the highest level of care across all specialty units, including:
As leaders in CDH research, our affiliated physicians are pushing the envelope aiming to improve long-term outcomes for kids with CDH. The multidisciplinary physician team has played a major role in the continued advancement of CDH care, having cumulatively published more medical journal articles on CDH than most centers in the United States, providing education on CDH by teaching courses locally and giving lectures throughout the country, and furthering research by gathering data to track long-term outcomes. The affiliated team’s long history of dedication to advancing CDH research and outcomes has resulted in the program’s position as a national referral center.
How do you choose the right place for your child, your family and yourself?
Finding the best care means finding the best team. At Children’s Memorial Hermann Hospital (CMHH), we approach every CDH patient as a potential survivor. Physician specialists and nurses use high-tech therapies and advanced equipment without losing sight of the value of human touch to the infants and children in their care. This approach has translated to higher-than-expected risk-stratified survival, as well as one of the highest rates of surgical repair in the world.
Click here to read the key questions to ask your provider when making a decision about you and your child’s care.
If you have any questions, use the online tool below to help us connect with you. To refer a patient or schedule an appointment, please contact our clinic using the information below.
Pediatric General & Thoracic Surgery
6410 Fannin Street, Suite 950
Houston, Texas 77030
Office Hours: 8 a.m. to 5 p.m. (Monday-Friday except major holidays)
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