How do you choose the right place for your child, your family and yourself?
Finding the best care means finding the best team. At Children’s Memorial Hermann Hospital (CMHH), we approach every CDH patient as a potential survivor. Physician specialists and nurses use high-tech therapies and advanced equipment without losing sight of the value of human touch to the infants and children in their care. This approach has translated to higher-than-expected risk-stratified survival, as well as one of the highest rates of surgical repair in the world.
Below are key questions to ask your provider when making a decision about you and your child’s care.
Does the team care for more than 10 patients with CDH every year?
Yes. The multidisciplinary team provides specialized care to an average of 15 patients annually. Many are high-risk patients or have other related anomalies (such as cardiac or chromosomal).
Does the hospital have a dedicated CDH team?
Yes. A comprehensive CDH team is a vital component to a patients overall success. At Children’s Memorial Hermann Hospital our nurses and affiliated physicians work in concert to provide families with the best possible care. CDH is a complex condition that requires a comprehensive team who combine their individual areas of expertise to optimize the overall care plan. CDH care is often 24 hours a day, 7 days a week from before delivery through discharge from the hospital.
Does the hospital have an affiliated fetal center?
Yes. CDH care starts from the moment of diagnosis. At The Fetal Center at Children’s Memorial Hermann Hospital, accurate diagnosis, prenatal monitoring, genetic counseling, and prenatal intervention require a team of specialists focused on the care of the unborn child. The Fetal Center is at the forefront of prenatal treatment for CDH, participating in an international research trial to provide leading-edge techniques for the treatment of severe CDH in babies still in the womb.
Does the hospital have a high-risk birthing center within the same building?
Yes. The Women’s Center at Children’s Memorial Hermann Hospital is a high-risk birthing center with private, state-of-the art labor and delivery suites. Maternal intensive care services and a Level IV NICU are located just a short elevator ride away. Our staff is specially trained in medical and surgical care of obstetric and neonatal patients and work with each family to develop an optimal delivery plan.
Does the hospital have a Level IV Neonatal Intensive Care Unit (NICU)?
Yes. Children’s Memorial Hermann Hospital (CMHH) is home to a 118-bed Level IV neonatal intensive care unit (NICU), equipped to care for critically-ill and extremely premature neonates born as early as 23 weeks. Our NICU is staffed 24/7 by a team of specialty trained physicians and nurses trained to care for critically ill babies. CMHH and McGovern Medical School at UTHealth, in collaboration with March of Dimes, have established the first-ever center in the U.S. dedicated exclusively to improving safety for pregnant women and babies.
Does the affiliated team have pediatric surgeons who routinely manage CDH?
Yes. Physicians in the department of Pediatric Surgery at McGovern Medical School at UTHealth have taken a progressive approach to the care and treatment of patients with CDH for more than 30 years. A team based approach benefits patients most when there is a continuum of care and active communication to ensure your child has 24/7 access to CDH expertise.
Does the hospital have Extracorporeal Membrane Oxygenation (“ECMO”) expertise?
Yes. The Pediatric ECMO Program at Children’s Memorial Hermann Hospital (CMHH) has been recognized by the Extracorporeal Life Support Organization (ELSO) as a Designated Center of Excellence since the inception of the award in 2006. As a high-volume program in Texas, the Pediatric ECMO Program supports approximately 30 patients each year.
Does the hospital offer a dedicated CDH clinic for ongoing care after discharge?
Yes. Through its affiliation with McGovern Medical School at UTHealth, the affiliated physicians operates the only long-term multidisciplinary follow-up clinic in the southwestern US. The Comprehensive Center for CDH Care, affiliated with UT Physicians, is a long-term multidisciplinary outpatient clinic for CDH patients. This specialized clinic provides families focused attention from fetal intervention to postnatal treatment at infancy through follow-up care during childhood, with a seamless transition of care through adolescence and into adult subspecialty care.
Long term follow up is an essential element to the care and development of a child with CDH. The multidisciplinary team tracks a range of outcomes across various subsets, creating a rich source of data so that we can continuously improve care and positively impact patient outcomes.
Is the team actively involved in research?
Yes. The affiliated physicians at Children’s Memorial Hermann Hospital are actively engaged in an intensive research program focused on the mechanisms, treatment, and cure of CDH and other fetal disorders with the goal of improving patient outcomes.
What role do parents play in their child’s care?
At Children’s Memorial Hermann Hospital, we value family-centered care, actively involving patients and families to determine the best plan of care. Families are provided with objective information about the disease state and involved in the decision making process from the beginning. Our team of nurses and affiliated physicians work in concert to provide patients and families with the best care possible.
What is the affiliated team’s overall survival rate?
The severity of CDH varies largely based on the position of the liver. Thanks to more accurate prenatal diagnosis and the work of the International CDH Study Group Registry, which resides at CMHH and McGovern Medical School at UTHealth, the global survival rate is steadily rising. Based on risk adjusted data, our outcomes are in the top 10 percent or higher. The overall survival rate is 70 percent.
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